We did it. We have founded an international patiens association for a super rare diagnosis, and even more rare when it comes to survivors of the illness that is so lethal. ”Aorta Dissektion Föreningen Skandinavien”
Seventeen survivors, all in different cities in Scandinavia.
Four (4) survivors in Denmark from Tønder, Fredrikshavn, Stenløse and Aalborg.
One (1) survivor in Norway: Flisa.
Twelwe (12) survivors in Sweden from Mariefred, Sollentuna, Gävle, Göteborg, Eslöv, Örebro, Alingsås, Stenungsund, Partille, Staffanstorp, Hällingsjö and Sandared.
Together we have founded the first non-profit international patients association for survivors of Aortic Dissection in the World.
We have statutes that has been discussed and revised nine times before we all agreed. We have a formal board with a chairman, secretary and treasurer. We have an auditor, and two alternate board members. All in all five (5) survivors has taken on formal duties to be able to set up the association.
Most of us have never met in real life, we have found…
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